April from April showers gift shop calis shared a video on facebook last week of a Turkish child suffering from Butterfly disease (where their skin peels away) it truly is horrific.
They were appealing for help for medicine, I do not know if this is because they can not get it or its too expensive, this child obviously needs help but i do not much about it other than the bits i have manged to translate myself ...which isnt much I know!
Bunyamin Erdemir is the name of the campaigner who made the original post,the video is on his site dated 17th july.
IS there is anyone who can check this story out and give a good translation of the facts .....is it possible we can help if they still need these medicines.
I have made inquiries here in the UK and the products are available over the counter in chemist aprox £15.
Appriciate any news on this topic pleaae.