Author Topic: Daughter Update  (Read 8929 times)

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Offline Lotty

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Re: Daughter Update
« Reply #10 on: April 06, 2017, 11:02:35 AM »
Sounds like she's responding well Bernie, stay positive. Lotty xx  8)



Offline stoop

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Re: Daughter Update
« Reply #11 on: April 06, 2017, 14:57:04 PM »
Great news! I hope she continues to improve  :)

Offline BernieTeyze

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Re: Daughter Update
« Reply #12 on: April 10, 2017, 21:31:13 PM »
What did he have Rana? Which one? Great that he has survived 15 years, that is really uplifting to hear,..which country is he in?

Daughter went for her 'Big' appointment today. Bloods down to 25 and spleen is only 2cm more than the normal size. There is something amiss with her test, something that the Consultant has never seen before. The philadelphia gene when it is broken down should show something and my daughters shows in her bone marrow, but not in her blood. People usually show it in their blood and not their bone marrow. So tests are being sent somewhere else to be retested at some place. A little bit disconcerting that he has never seen it  ??? :-\, but All in all a good day.  ;D
And Tonight We Sleep!   :)
Bernie

Offline sadler

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Re: Daughter Update
« Reply #13 on: April 10, 2017, 22:11:17 PM »
Sleep tight Bernie. Sending Thoughts and prayers to you all.

Offline Rana

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Re: Daughter Update
« Reply #14 on: April 10, 2017, 22:16:05 PM »
He has Chronic Myloid Leukaemia Bernie. He agreed to trial a new drug and never looked back. Don't know the name of it but probably used now.  As i said at least 15 yrs now. He is in Liverpool England.

Offline BernieTeyze

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Re: Daughter Update
« Reply #15 on: April 10, 2017, 23:39:13 PM »
She is on imamitib it seems to be doing the job. That's really great that he is 15 years into it, thank you for sharing that info. Nice to hear something positive  xxx

Offline BernieTeyze

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Re: Daughter Update
« Reply #16 on: March 19, 2020, 18:48:38 PM »
With a heavy heart my beautiful baby Adele passed away last night in Devon. The intensive care unit at Torquay hospital fought valiantly to save her,throwing every drug into her and giving her dialysis. Her body couldn't fight anymore, multi organ failure. It wasn't the leukaemia that killed her though, they had no answers despite testing her for about 50 different diseases all testing negative. How come in this day and age there are unknown bugs that can wreak havoc..no it wasn't corona virus either,or the other things they tested for. It was just her time.She was 40 on December 12th, feel so bad for her children. A very special light has gone out in the world and I am lost.

Offline Steve A

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Re: Daughter Update
« Reply #17 on: March 19, 2020, 19:03:53 PM »
So sorry for your loss

Offline KKOB

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Re: Daughter Update
« Reply #18 on: March 19, 2020, 19:13:13 PM »
Sorry for your loss Bernie. I understand the pain of losing a child.

Offline Highlander

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Re: Daughter Update
« Reply #19 on: March 19, 2020, 19:31:10 PM »
Deepest condolences Bernie. WE too know the pain of losing a child :( :( :( :

R.I.P. Adele




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